Frozen Ball
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Please Join us for our Frozen Ball, and help in Carmela's fight to stay mobile.
Their will be Stories, Games, Sing-a-long a plus meet and greet with Elsa and Anna.
Special music performance from Pippa Langhorne as seen on Britain's Got Talent.
All finished with a Disco of children's Movie greats.
Available at additional cost on the day - Professional photo with Elsa and / or Anna £3.50 (Limited spaces, please book at time of booking)
Sweet cones and Bows (Bows kindly donated by Sugar and Spice Bows)
Carmela has a rare progressive muscle wasting disease, shortening her life to around 16 or less. Carmela is a fighter and is determined to stay mobile and enjoy her short life – but it costs!
Carmela is a very happy, bright and funny little 5 year old girl from Wiltshire with a zest for life but she struggles with daily obstacles.
Carmela’s condition is called LMNA Congenital Muscular Dystrophy which is a very rare type of progressive muscle wasting disease with only around 50 known cases in the UK. It weakens every muscle in the body including the heart and lungs. Consequently, children with the condition can be lost suddenly due to heart related problems or are fortunate to make it to 16 years.
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